Eye on Christmas Card of Nationally Followed “Miracle baby”
TAVARES, Fla. (AP) — A Florida couple say presents have piled up for their year-old son, whose Christmas card with Santa captivated readers nationwide.
Jaxon Buell first had a small following of family and well-wishers on the Facebook page his parents set up shortly after he was born Aug. 27, 2014, with a rare condition that prevented much of his brain from forming and left half his skull flat.
Tens of thousands of people have liked the “Jaxon Strong” page now, after the baby made national news while being treated at a Boston hospital.
“Now if we go two days without posting something we get messages, ‘Where’s my blue-eyed angel?’ or ‘Is he OK?'” his mother, Brittany Buell, told the Orlando Sentinel (http://bit.ly/1PnHlXS). “It’s amazing and surreal the connection people have with Jaxon. He has followers on every continent besides Antarctica.”
A Christmas card showing Jaxon leaning into Santa’s ear garnered more gifts and donations for the boy and his parents. Six or seven presents have been arriving daily at the family’s Tavares home, the boy’s mother said.
“We feel so humbled with the amount of support and love Jaxon has received from his followers online, but even greater has been how his story has been able to help others going through similar situations,” said Brandon Buell, Jaxon’s father. “His story is going to benefit the medical world and help benefit other families that will walk in a similar path as us in the future.”
Jaxon was born with microhydranencephaly and doctors initially said he wouldn’t develop motor skills such as smiling, speaking or playing with toys. Over a year later, Jaxon can smile, roll over, say “momma” and “dadda,” and he tries to crawl. However, he also has a feeding tube and medications he needs four times a day.
More than $162,000 has been donated to the family. The Buells say they’re giving the cash to hospitals researching similar conditions and various medical facilities that have helped them.
“The vast majority of children who have had microhydranencephaly either were aborted or died shortly after birth, so there isn’t a lot of similar cases to compare Jaxon to,” said Dr. Carl Barr with Florida Child Neurology in Orlando, one of the doctors treating Jaxon. “He’s definitely writing his own book. We’re all just along for the ride.”